A Neurotypical Meltdown
One of the
constant points made by many parents, professionals, and other people regarding
autistic children is that their behaviors are “autistic” behaviors. They use
this to show a contrast between “autistic” behaviors versus “normal” behaviors.
One of the
cornerstone events that many autistic people have, in some cases, daily, is the
meltdown. Because it happens so often with autistic people, neurotypical people
often believe that this is an autistic trait. But as I am going to show you in
this essay, that is a misconception. Equally false is the notion that only
children have meltdowns. Adults, in certain situations, will melt down as well.
For example, TV reporters often showed adults who were melting down as they
tried to survive Hurricane Katrina during the aftermath of the storm.
Why does a
meltdown occur? There is a simple reason—a person is put in a situation they
cannot deal with mentally, and they cannot escape that situation, so they fall
apart. Their mind is telling them they need out, but the person in power says
no—they must stay. Then the mind falls apart, and the child starts going crazy.
Meltdowns
are deliberately irrational. If you have to get out, you have to GET OUT, and
it’s not a matter of negotiation with other people. You don’t negotiate with a
meltdown—because the reason why the child is melting down is because he can’t
compromise. He tried to say out nicely, and is hoping this will get him out.
Indeed, one
of the biggest reasons why school is so horrible for an autistic person is that
there are so many restrictions on when he can get out if he wants to or has to.
This
applies to everyone—whether or not they are a child or an adult, neurotypical or
autistic. Temper tantrums and meltdowns, in fact, are quite frequent in babies
and two-year-olds, even if they are neurotypical.
I have
melted down before. All of my meltdowns had this in common. I can remember days
I was about to be forced to do something terribly stressful. I knew that I had
to leave, but I could not leave—so I just started crying and announcing my fear
in the desperate hope I would be listened to.
Since January
of 2005 I have been volunteering at a local daycare center. At this daycare, I
witness children who don’t want to see their parents leave, and sometime burst
into tears. At the same time, children who have had a good time at the daycare
also are sad when their parents come to get them, and they sometimes burst into
tears.
But a few
months ago, I witnessed a meltdown that was very significant not just because
the child melted down, but because of how the parent responded to it. I saw a
neurotypical girl, who was six years old, revert to behaviors associated with
autism. And the causes were obvious to me.
So when I’m
at the daycare, playing with one child, in walks three children—two girls and a
baby boy. They’ve come before.
I see in
the back of my eye that the six-year-old, the oldest child in the family, sits
down in a rocking chair. I look a few minutes later and she appears to be on
the verge of tears. Suddenly I hear her crying, asking the staff for her
mother. Then I hear this loud screaming. I look back, and It’s her.
She starts
screaming, “I want my mommy! I want my mommy!” One of the staff members says
she will get her mommy. “I want her now!” she cries.
I know
pretty well that the staff is just lying to her to make her feel better,
because that parent is not going to come back. No parent ever has before. I return
back to the game I’m in with the other child, still hearing her scream in the
background. Then the screaming stops and then I just see her move down to
another chair, sit down, her face in tears, frozen and silent after having a
meltdown that failed.
Let me
remind you that this girl has no diagnosis of autism or anything else.
Now, the
game I’m in ends, and that child goes back home to his mother. With the girl
calmed, I approach her. We start playing. And she has a good time. She
lightened up. And then, the mother walks in. I tell the girl her mother’s here.
She runs to her mother.
Her mother
says to her, “You misbehaved. You did a bad thing and you need to apologize.
Say you’re sorry.”
The girl
looks at her mom and says, “No.”
“Say you’re
sorry.”
“No.”
“Say you’re
sorry.”
“No.”
Suddenly
the girl tries to get away from her mother, but her mother grabs her hand to
stop her from escaping.
“We’re not
leaving here until you say you’re sorry.”
“No.”
“Say you’re
sorry.”
“No.”
“We’ll stay
here until it closes if you don’t say you’re sorry.”
“No.”
“You know,
everyone is hungry for lunch. Your sister wants to go home. So just say you’re
sorry.”
“No.”
I sit down
in a comfortable chair and witness this, eyeing the clock. This goes on for another
ten minutes. I am silent. Obviously I didn’t go off and lecture this parent,
nor did I tell her I was going to make her name mud in my next presentation…
“Say you’re sorry.”
“I’m
sorry,” she says very softly.
“No, you
have to say it nicely. Say it.”
During this
her younger sister, a four-year-old, says to her mother, “I’m sorry, Mom. I’m
sorry” constantly.
“No, you
didn’t misbehave. Your sister did. She has to say she’s sorry.”
Then the
mom says to her younger daughter, “Now, do you want to go home?”
“Yes,” the
younger sister said.
“Then tell
your sister that. Tell her to say she’s sorry so we can go home.”
“I want to
go home,” the younger sister said.
“You see?
You’re hurting your younger sister. Now say you’re sorry.”
“No.”
“I can’t take
this anymore. Say you’re sorry.”
“No.”
“All right.
We’re staying here until you say sorry. We won’t even go on the trip we’re
taking this week. Say you’re sorry.”
“No.”
So another ten
minutes passes with the girl refusing to say sorry. By now she’s trying to get
away from her mother and resorting to scratching her mother’s arm to get away.
“Say you’re
sorry.”
“No.”
“Say you’re
sorry.”
“No.”
Eventually
the girl, totally defeated, after having fought her mother for a record time of
over twenty minutes, goes up to the staff member and says, “I’m sorry.”
Then they
leave. On the way out, her mother looks at me and says, “Thank you for being
with her.”
I do not
think of myself as a miracle worker, or a savior. However, when she returned a
week later, I spent most of my time with her. We had a great time playing
together. Eventually she was able to make herself at home at the daycare,
playing with the other kids, after she enjoyed being with someone who never had
an obligation to be with her in the first place. She has never melted down
since. And her mother was nothing but polite and thankful to me every time she
picked up her kid.
Most of us
who have read this essay pretty much see how the mother was overreacting. Yet, of course, she got away with it because
she was the “one in charge” and could hide behind the fact that she was the
“adult.”
Everyone
blamed it all on that six-year-old—when in fact the mother was just as much at
fault as her daughter. Her daughter was wrong to talk back to her mother. Her
daughter was wrong to scratch her mother. But her mother was wrong to escalate
the situation. She was also wrong for blaming her daughter for the misery of
her daughter’s younger sister. In fact, you could say that the mother did it to
herself. She didn’t come for her daughter, and when her daughter melted down,
she had to nerve to ask for an apology and to call it misbehaving.
But all her
daughter was doing was showing some emotion towards her mother, and she got
punished. What is this mother teaching her child? Not only do her feelings not
matter, but that showing love toward your own parent is misbehaving. And that
will only hurt the mother in the long run.
I’m not
faulting the mother for not coming back to her daughter when her daughter had a
meltdown. I am faulting the mother for making a big deal out of that meltdown
instead of comforting her daughter and reassuring her that it was okay. That
was ridiculous! And then escalating it for twenty minutes.
Then
another technique was used which has been used many times by people who have
the authority—blame it on someone else. Or, blame the victim. When the girl’s
mother blamed her daughter on keeping her younger sister from leaving, I
thought to myself, Your daughter is not keeping her sister from leaving. You
are.
Obviously,
you cannot back down if you’re the mother after twenty minutes. Neither can you
let the child get away with scratching her mother’s arm. Nor can you let the
child win after twenty minutes.
But who
started it? Who provoked the child that compelled her to scratch the arm? The
mother. The child cannot win, but the mother should not have made “winning” an
issue in the first place.
Is it any
wonder why autistic people become emotionally distant? They go through dozens
of these, and this happens to them each time. Can’t you understand why they
don’t want to be with people?
You are
going to have to listen to an autistic child if you want to prevent a meltdown.
This might seem unthinkable, but is it really? Is it really worth fighting a
child who is suffering if you could just compromise and accommodate the child?
Was it really worth it to make such a big deal over a few emotions of love
toward the mother?
Another
lesson here that should be mentioned is that attempts to take the “easy” road
out work both ways. However, often times, one person is unable to understand
that. There’s no denying that it is much harder for the mother to listen to her
child than to just discipline her. She’s trying to take the “easy” way
out—blame it on the kid, so she doesn’t have to blame herself. What she doesn’t
realize is that her child is trying to do the same thing. Since it is more
difficult for her to say she’s sorry, she is trying to not give in to her
mother, whom she feels is unjustified.
Most fights
after all, occur under that principle—two parties find themselves justified but
feel the other party is unjustified, and so are willing to fight.
There’s no
doubt about it—understanding a child with autism, or sometimes, is tough.
Sometimes you may understand the child, but just don’t care. At home, I have a
sister who’s three, and even though she’s not autistic, her behavior is similar
to that of an autistic person. And I’ve felt similar anger that my mother felt
toward me when she becomes quite rigid about certain issues, such as having to
have a specific toy with her in the car. It’s helped me develop a theory of
mind toward a parent of an autistic child—to understand it from their point of
view as well as mine. Since you wouldn’t find anything wrong with saying you’re
sorry, how come this child is not doing that?
But it is
still worth it—if you can listen.
However,
the most important lesson here is that autistic children are not the polar
opposites of other children—they are still children, and the same mechanisms
that cause autistic people to fall apart appear in normal people. And parents
of those children will act the same way as they would with an autistic child.
It’s not that autistic people fall apart and
normal people don’t, it’s just that autistic people are put in more situations
that force them to fall apart because of their autism. But neurotypical people
would not be any different.